Brynnon's Update

Well... Brynnon's medication was changed to Depakeen in place of the Oxcarbazepine. This seems to have better control on the myoclonic seizures he was having all night long every night. It seems to have calmed him down a bit also. We have his registration off to med-camp to go to Shining Stars Camp, for kids with Epilepsy. I think it will be good for him to meet other children like him. Now that he is getting older (11.8) I think his low IQ is becoming more evident. Still waiting for the appointment at LSU Epilepsy Center in New Orleans. Perhaps they can at least give a better idea of his diagnosis and prognosis with the Epilepsy. All we have on the agenda medically is his blood work Thursday and his appointment this Summer with the Jefferson Neurobehavioral Group to hopefully get a better picture of his outlook academically. Still not sure of the Seizure Alarm is doing it's job effectively. I suppose that him being so active in sleep may be affecting the outcome. The alarm goes off several times most nights because he has gotten too close to the wall and it looses detection of him and also because of the myoclonic seizures if they are frequent. So... it's all a waiting game with Brynnon, lots of questions still and doesn't look like all the answers will come as quickly as I would like. He is chugging along in his home school work, slow but steady... Looking forward to finishing the 1st AVKO Spelling book in the next few weeks, if only he would retain more of what he learns... but I am ever thankful for the progress he has made!